I am thrilled to know, though, that his oldest son, Steven, has been accepted at the University of Illinois. In my last conversation with Marty, he was so hoping this would be the case. Steven attended 4 years of HS at an exam school which is part of the U of I campus, and he has thrived in the program. He has also became an Eagle Scout last week. Lots to be very proud of.
I do not know how Karen can be there day in and day out with the frustration of not knowing, what will happen with Marty. She says the hallucinations continue through most of the day, as she mentions "the voices." Sam is their younger son, 14. Thank you everyone for your continued thoughts and prayers.
Hard day today.
Sam & I left him about 8. Thought he would have the spinal tap done today-
seemed like we were waiting all weekend for it- now it will be tomorrow. Looking
for some obscure infection or ruling it out at least. The anti-seizure med-
Dilantin – levels wouldn’t stay up in therapeutic range even though they kept
increasing it. So they switched that to a different one. They had started an
anti-psychotic drug and that one Marty didn’t like the way it made him feel so
they are going to try a different type of that medicine tonight. Whatever the
combination of things they gave him last night or the amount made him sleep all
night but… all day too. Could barely get him to wake up through the day. They
cut one of those meds in half for the dosage now.
Something made his heart rate and blood pressure
go pretty high while I was gone around dinner time so now they also have used
some beta blockers. The doctor had said they would have to watch him with the
new anti-seizure med as some people have some heart rate issues with that.
All in all it was a pretty frustrating waiting,
waiting, waiting day and despite all this he still has the voices ragging on him
pretty hard. It’s all a little hard to see him like this and a bit scarey. He’s
just not himself, and he knows it, and he doesn’t like it. Sorry to not be the
bearer of better news tonight but thought I should give you an update. Hopefully
we will have betters answers soon.
Good news is that Steven found out on Friday
that he got accepted to the U of I for next fall in Mechanical Engineering and
we were able to share that with Marty. Steven is still waiting to hear from
another school but has pretty much had Illinois on the top of his list. His high
school is located right in the middle of the Engineering campus on the U of I.
Love, Karen
4 comments:
Congratulatios to Steven for a job well done!! and getting accepted to the U of I is just GRAND!!
So to hear they still haven't found out what is wrong with Marty. I really feel for Karen and keep her family & Marty in my prayers. ...debbie
I'm glad for the good news about Steven, but sad that Marty's situation remains so frustrating. Keep us posted.
Oh Marcia. So hard for everyone. I have two Eagle Scout grandsons--a great accomplishment for any boy to attain. Major congrats to Steven!!! He will be a Big
Ten(ner) next fall--UofI is a great school--I visited their campus a few years ago. They have a John Phillip Sousa museum in the top floor of their music building.
Know that Marty is on my prayer list, as are you.
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